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Family Resources

5 Dementia Care Resources Every Family Should Know

The complex symptoms of dementia manifest in different ways. Consequently, every individual will experience a unique combination of cognitive, motor, and behavioral changes. This poses a real challenge for caregivers. It doesn’t matter if you’re first learning that your loved one has a dementia diagnosis or you’re navigating the later stages of dementia, the process is never easy and can feel rather frightening. But you are not alone.

Communities across the country and around the world are constantly gathering helpful resources to answer your questions. This list is a great place to start that exploration.

Helpful Resources and Support for Dementia Caregivers

At CornerStone Senior Living, we believe in the power of community and encourage anyone who has dementia in their life to take a look at these resources. It’s also helpful to revisit them from time to time! They have plenty of information to help provide clarity and encouragement for caregivers, family, and loved ones.
  1. Alzheimer’s Association
This well-known organization is popular for many reasons. They are leading the way in accelerating global research on Alzheimer’s, and you could easily spend hours reading their helpful tips. Their articles include all types of relevant advice, such as how to approach the holidays with dementia in the family. There’s even a wide range of topics specifically geared toward kids and teens. The Alzheimer’s Association also has an easy search function to locate support groups for both caregivers and individuals living with Alzheimer’s or other dementia.
  1. Lewy Body Dementia Association
As the second most common type of progressive dementia, Lewy body dementia (LBD) is not a rare disease. Like other forms of dementia, LBD symptoms are treatable. However, it’s incredibly important for individuals to receive an early and accurate diagnosis. The Lewy Body Dementia Association explains that medications that are often helpful for treating cognitive, movement, and behavioral concerns with Alzheimer’s disease or Parkinson’s disease with dementia patients could actually worsen LBD symptoms, including anticholinergics and some antiparkinsonian medications. If your loved one has received a diagnosis of LBD, the organization’s outline of key things to know can be a useful introduction of what to expect. Obviously every patient should have their own treatment plan, and consulting with your physician is crucial, but the more resources you can consult for dementia care, the better.
  1. Idaho Commission on Aging
This government website shares information and resources both for caregivers and independent seniors remaining at home. The Idaho Caregiver Alliance is on a mission to improve access to high-quality support for all types of aging and dementia-related challenges. It’s also worth noting that Idaho has six Area Agencies on Aging specifically for caregivers across the state. If you aren’t living in Idaho, though, the Family Caregiver Alliance has an online tool to search for public, nonprofit, and private programs by state. It’s a great way to identify local services.
  1. National Institute on Aging
As a caregiver, making self-care a priority is crucial for both yourself and your loved one. It can be all too easy to fall into feelings of distress during these times of transition. The content on this Alzheimer’s Caregiving webpage offers reminders that caregivers also need their own help. The National Institute on Aging also shares helpful caregiver affirmations that you can use to maintain your confidence as you cope with daily demands. The organization also emphasizes that finding support will be in the best interests of both you and your loved one.
  1. Alzheimer’s Foundation of America
This is another great resource for caregivers to learn more about the road ahead. One highlight of the Alzheimer’s Foundation of America is that they provide free, one-on-one assistance for caregivers through the AFA National Toll-Free Helpline. It’s staffed entirely by licensed social workers who are trained in dementia care. They can be reached by phone toll-free from 9 a.m. to 9 p.m. EST / 11 a.m. to 11 p.m. CST. Just call (866) 232-8484. You can even live chat on their website too, which can be great when you’re looking for quick guidance. Their website also includes a variety of Alzheimer’s & Dementia Facts & Tips related to dementia progressions and strategies for caregivers to incorporate into their daily routines.

Connect with the Best Senior Living Community—Right Here in Boise, Idaho!

When dementia is in your life, our team at CornerStone Senior Living is here to help. We’re passionate about supporting our residents as they make the most of every day. Along the way, we’re also helping family and friends gain peace of mind. You don’t have to travel through the stages of dementia alone.

Asking for help isn’t a sign of weakness, and it doesn’t suggest that you lack a sense of caring. The opposite is often true.

Navigating this journey is full of challenges, and building a local support system can be a great source of strength—and evidence of strength. We all need to understand our own physical and emotional limits, and calling on a community is a great way to ensure you can continue to offer the care and attention you want to give. Our community at CornerStone is specifically designed to serve the best interests of individuals living with any stage of memory impairment. Stay tuned for new resources and insight into the latest research and therapeutic techniques for memory care and assisted living. Whether your loved one has already joined our community or you’re still reviewing your options, we are always happy to connect. Please let us know what’s on your mind: (208) 322-1555.

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